Join a worldwide database of those who suffer from VS/HPPD. You’ll provide important statistical information to our researchers and you’ll be able to see the doctors treating VS/HPPD in your area.
YOU ARE NOT ALONE!
TOGETHER, WE WILL EDUCATE THE PUBLIC WHILE SEARCHING FOR A CURE
The Neurosensory Neuroregenerative Research Foundation (NNRF) a non proft 501c(3) is comprised of individuals dedicated to unraveling the neurobiological underpinnings behind two relatively unknown, under-recognized yet prevalent neurological conditions — Visual Snow (VS) and Hallucinogen Persistent Perception Disorder (HPPD). The two neurological diseases share similarities in symptom complex, and with the proper resources in research, funding and advocacy, the NNRF hopes to aid this desperately deserving patient pool. Education is key. A lack of proper physician training leads to a dearth of quantified VS and HPPD cases. In the end — many Physicians cannot identify VS or HPPD because they haven’t learned about the maladies. This leads to misdiagnosis, the prescription of ineffective and potentially harmful medicines, and the worsening of symptoms. A few of these cases lead to tragic outcomes. The NNRF is here to shift the paradigm for those who suffer from VS or HPPD.