You're Not Alone. Together, We Will Educate The Public While Searching For A Treatment And Cure
The Neurosensory & Neuroregenerative Research Foundation (NNRF) is comprised of individuals dedicated to unraveling the neurobiological underpinnings behind two relatively unknown, under-recognized yet prevalent neurological conditions -- Visual Snow (VS) and Hallucinogen Persistent Perception Disorder (HPPD). The two neurological diseases share similarities in symptom complex, and with the proper resources in research, funding and advocacy, the NNRF hopes to aid this desperately deserving patient pool. Education is key. A lack of proper physician training leads to a dearth of quantified VS and HPPD cases. In the end -- many Physicians cannot identify VS or HPPD because they haven't learned about the maladies. This leads to misdiagnosis, the prescription of ineffective and potentially harmful medicines, and the worsening of symptoms. A few of these cases lead to tragic outcomes. The NNRF is here to shift the paradigm for those who suffer from VS or HPPD.
Excerpt From 60 Minutes
"In an effort to improve expectations at the physicians office for both patient and practitioner, advocacy campaigns would be tailored primarily to parents, educators, emergency room personnel, psychiatrists and psychologists who are typically the first to encounter individuals that suffer from neurosensory dysfunction. Through advocacy and awareness countless lives can be saved. Through proper treatment by physicians who are empowered with the knowledge in identifying the telltale signs of VS and HPPD quality of life can be preserved and through research can a cure be found."