Dr Goadsby was first turned on to visual snow because of something called migraine aura. As a headache expert, he was continually seeing patients that complained of a visual disturbance similar to disturbances experienced by migraine patients. An hour before the headache comes on, migraine aura sufferers begin to see disturbances in their field of vision, including static, zig zag lines and squiggles. For those unfortunate migraine sufferers, the visual disturbances would subside after about an hour. For visual snow patients, the static never goes away. Goadsby soon made the distinction between migraine aura and something completely different — Visual Snow.
Unfortunately, the doctor’s quest to get Visual Snow recognized as an independent disease was met with laughter. Other doctors in the field continue to think Goadsby is crazy for his quest to get visual snow recognized. And that is the fight that we must join. We must help the medical community and the world to realize there is a distinct disease that causes sufferers to persistently see static in their fields of vision. Until visual snow is taken seriously by the medical community, many will suffer needlessly.
Because visual snow is not completely accepted by the medical community, many patients suffer needlessly. In a quest for answers, many patients see a dizzying array of doctors; each with their own misdiagnosis and needless treatment. Sometimes these needless treatments can put the patient in harm’s way.
Visual snow is a common symptom of HPPD. The fight to get visual snow recognized in the medical community will also help HPPD patients in the long run. We are all in this together.
It is important that we all join this fight. Your donations to the NNRF help us educate the medical community while researching for treatments and cures. You can also help by posting our news stories on social media, registering on our website, printing out informational materials to bring to your doctor, and by joining the discussion in the forum. Together, we’ll put VS on the map.