The Neurosensory Research Foundation having invested more than ten years in working toward the first in depth research protocol for HPPD is please to announce an inviation to participate in the LimeSurvey sponsored by Macquarie University and ICAN. Persons affected with HPPD are highly encouraged to participate as the results will pave the way for other modalities of research that will hopefully lead to the discovery of a biomarker, a diagnostic, therapy and ultimately a cure. That’s been our mission since day one. This survey is soon to be followed up by another throught the efforts of Dr. Stephen Locke who took over Dr. Henry Abraham’s practice soon after he retired. Through the efforts of the NRF, a virtual conference was conducted between Dr. Locke, the Macquarie team and members of the Johns Hopkins Center for Psychedelic & Consciousnes Research  where it was proposed a follow up Hopkins survey would soon follow. It is our hope this initial collaboration will lead to more research between these two prestigious institutions and inspire others who work in the Neurosciences to join them. Continued support of the NRF will allow us to continue our work and expand upon it. For now, please read the annoucement, share it, sign up and participate!

Thank you,

NRF Admin

Hallucinogen Persisting Perception Disorder (HPPD) Macquarie University (MQ) – ICAN Protocol

 

Hallucinogen persisting perception disorder (HPPD) refers to the condition in which an individual, after the consumption of hallucinogens, experiences recurring sensory disturbances years afterwards that are reminiscent of those experienced during the intoxication of the hallucinogen. It is particularly associated with the consumption of lysergic acid diethylamide (LSD) ecstasy (MDMA) and other recreational and prescription medications.

This project is a collaboration of Macquarie University and ICAN, and is carried out by our highly specialised team of clinical researchers, Ophthalmologists and Psychiatrists who have been studying HPPD and its relevant visual symptoms for many years. The team is based in Australia with Dr Wei He (MQ/ICAN), Associate Professor Paul Sowman (MQ), Professor Harry McConnell (ICAN), Associate Professor Clare Fraser (MQ), Ms Anneliese McConnell (MQ/ICAN). We are also collaborating with Dr Steven Locke from Harvard and Dr Natalie Gukasyan from Johns Hopkins for the questionnaire part of this study.

Phase 1: The LimeSurvey Questionnaire

The questionnaire examines the nature of HPPD, the effect of hallucinogens on the condition and the changes in the brain processing of vision that may occur in patients with HPPD. The study involves an online survey to obtain information across basic demographics, drug use, HPPD symptoms and medical comorbidities. We are looking at the nature of symptoms, their medications and other conditions people may have. 

Everyone is invited to participate the questionnaire study. The questionnaire takes about 15 minutes – we will send you a link when you email us at hppd@mq.edu.au 

**Please check your Spam or Junk mail box for the link once you have email us but not got the link.**

Phase 2: Neuroimaging Protocol (only for those who completed the questionnaire)

Patients in Australia who have completed the questionaries will also have the opportunity to participate in our functional Magnetic Resonance Imaging (fMRI) and Magnetoencephalography (MEG) studies to precisely measure the spatial and temporal activities of the visual pathways, which will be used to compare with control participants who are free from visual hallucinations.

If you are in Australia and are interested in participating the neuroimaging protocol once completed the questionnaire study, please fill in this Microsoft Form and we will contact you for further information. 

We hope to be able to offer the neuroimaging protocol more widely, i.e., to non-Australian participants who completed the questionnaire study, in the future.